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Canadian Marfan Association |
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| Record Details | ||||
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| Address & Map | ||||
| Mailing Address | PO Box 42257 128 Queen St S Mississauga, ON L5M 4Z0 | |||
| Office Phone | 905-826-3223 National Office (Mississauga) | |||
| Toll Free Phone | 1-866-722-1722 | |||
| Fax | 905-826-2125 | |||
| info@marfan.ca | ||||
| Website | www.marfan.ca | |||
| Description | The Canadian Marfan Association, was founded in 1986 by Elizabeth McHenry and marfan patients and physicians. Its purpose is to: increase public awareness of Marfan Syndrome; provide accurate, timely information about the condition to affected patients, their families and health care personnel; encourage the establishments of Marfan self-help groups in communities across Canada; and support and foster research. The Canadian Marfan Association is a member of the International Federation of Marfan Syndrome Organizations. | |||
| Dates | Year round | |||
| Languages | English ; French ; Greek | |||
| Fees | Membership | |||
| Funding | Donations | |||
| Subjects | Associations ; Children ; Congenital disorders ; Disabilities ; Health ; Health education ; Musculoskeletal diseases | |||
| Alternate Contact | Eva Theofilopoulos, Executive Manager, Canadian Marfan Association,; Phone: 1-905-826-3223; Fax: 1-905-826-2125; Email: eva@marfan.ca | |||
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